A BC teenager with a rare and devastating disease is unable to get treatment because the province won’t pay for it.

Four other provinces are willing to shell out the $118,000 per shot of a drug that could alleviate Miles Ambridge’s symptoms.

Miles has spinal muscular atrophy and is confined to a wheelchair.

His mom, Anne Belanger wants to talk to provincial health minister Adrian Dix about it but he’s not returning her calls. “I’ve personally been hoping for treatment since Miles was diagnosed at the young age of 13 months and for the last three years since the drug, which is call Spinraza has been approved by Health Canada, we have fought tooth and nail to get treatment for all involved.”

NL News, along with several other media outlets, have tried to reach Minister Dix but so far, we haven’t heard back.

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